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It
is always a good idea to write down your questions before you see
the doctor so that you do not forget what you wanted to ask.
And
don't try and find out everything on the first visit! You will not
remember it all! Try to think about what you want to know now and
what will wait.
Remember
that the doctors and other health professionals are there for your
benefit and expect to explain and answer questions. Do not worry
that they may think your concerns trivial. They won't.
If
you do not understand what you are told, say so -- and ask for further
explanation.
Here
are some questions you may wish to consider asking. Why not print
out the list and mark those you want to ask at your next visit to
see the doctor.
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Do
you know the cause of my kidney disease? |
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Will
this cause my kidneys to fail? |
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If
so, when will this be? (Your doctor will only ever be able to
give you a rough estimate.) |
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Is
there any treatment available to stop my kidneys from failing? |
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If
so, what would this consist of? And what are the potential side-effects
and chances of success? |
If
you are told you will need dialysis (artificial kidney treatment)
you should ask to be shown the different types and given an explanation
of how they work. This may take between one to two hours, but it
is time very well spent.
At
this session consider asking the following.
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What
kind of dialysis would suit me best? |
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Can
I choose which kind of dialysis I want? |
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Is
home haemodialysis, overnight haemodialysis or haemodialysis
at a unit near my home available? |
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Can
I see the dialysis unit? |
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Can
you show me peritoneal dialysis including the dialysis tube? |
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Is
automated (night-time) peritoneal dialysis available? |
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What
are the potential complications of both types of dialysis? |
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Am
I suitable for a kidney transplant? |
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Can
someone in my family donate a kidney to me? |
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Is
it possible for me to have a kidney transplant before starting
dialysis? |
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What
is the success rate for kidney transplants? |
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Can I have some written information to take home? |
The following
are some general questions you may wish to ask.
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Is
there a social worker and or counsellor available for support? |
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Is there a local kidney patients' association I can contact? |
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What
is my life expectancy? |
Some
people do not want to think about this last question, which is quite
understandable. And remember, any answer to this question will be
based purely on statistics. No doctor can accurately predict how
long someone will live or what their quality of life will be. But
remember, many kidney patients live a long and enjoyable life so
think carefully about whether or not you feel you need to ask this
question.
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